Showing posts with label event. Show all posts
Showing posts with label event. Show all posts

Friday, May 13, 2011

All the Updates that You can Handle!

Sorry for the lack of updates but Blogger has been down for the last few days making it impossible to add any new content. But thankfully it's back up and what was not blogged about can now be written!

First of all, congrats to all we are now at $4005! Great job you guys!
Second of all here is the list of events that are soon to come.


From Amira Shaif

Have you ever wanted to help loved ones understand what you're going through with IBD, but not quite sure how to do it? Need a night out with friends? Want to help CCFA and Take Steps spread the word about an awesome fundraiser? Ben has suffered from Crohn's Disease for many years and has created the perfect performance. Although we know there is nothing "funny" about having IBD Ben shares his story with humor and gives the audience the opportunity to laugh along with him as he discusses what is sometimes considered the "un-discussable"....
PAIN IN THE BUTT - Benefiting CCFA LA Take Steps
Don't just join us, but tell your friends to come too!


http://online.ccfa.org/site/MessageViewer?em_id=82664.0&dlv_id=85385
Hollywood Improv
8162 Melrose Ave
Los Angeles, CA 90046
Thursday 05/19/2011
6PM Dinner & Silent Auction, 8PM Comedy Show
Tickets ae $25


REGISTER TODAY
For this FREE Teleconference/Webcast
This educational event will help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. Pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold will discuss:

Important differences between pediatric and adult Crohn's disease
The medical management of pediatric CD
The critical role of nutrition
Growth and development of the pediatric Crohn's patient
Quality of life and support systems


Thursday, May 19, 2011

8:00 PM to 9:15 PM Eastern Time
7:00 PM to 8:15 PM Central Time
6:00 PM to 7:15 PM Mountain Time
5:00 PM to 6:15 PM Pacific Time


First Annual Digestive Health and Wellness Expo - Orange County


Join us on May 21st from 1:00pm to 4:00pm

to learn new ways to facilitate total mind and body wellness.
Expo with be held at In Motion OC
17332 Von Karman Ave Suite 120
Irvine, CA 92614

Come and speak with doctors one on one, acupuncturists, Pilates instructors, yoga instructors, and many more.

We are excited to announce that The Bite Market, a gluten free market, will be at the expo with baked goods samples. Along with Bari Rooney, an IBD nutritionist.
For more information or if you would like a booth
contact Joslynn at jbroun@ccfa.org or 646-717-6208

AND DARRIN HAS OFFERED TO DRIVE!!!

Saturday, May 7, 2011

Yard Sale Update

As you may have all heard from Allison the total we raised from the yard sale came to $505! Which raises our total to $3870! We are almost to our goal and we still have more than enough time to reach it and even surpass it. Please thank Allison and Chuck for hosting the yard sale as well as all of you who could help out as well as all of you great people that donated stuff for the yard sale, we could have never done it without you!

Wednesday, May 4, 2011

Mid-Week Update and More Jazz

Greetings all! This is your midweek update, first of all let me congratulate you all as we have surpassed 50% of our Take Steps goal and are currently at $3340 $3365! Great job you guys, we are almost there!

On a similar note do not forget that this weekend, May 7th will be the day that we are holding our yard sale fundraiser at Allison's place. If you have anything to donate to the cause or simply wish to hang out please contact Allison so that she can give you all the pertinent info or contact me and I'll do the same. Darrin is also more than happy to pick up any large objects that you can't transport so please contact him if you need someone with muscles and a big truck. Contact me if you need someone with a dolly and an excuse on why I can't lift heavy boxes.

On to other things!

Upcoming Events:
MAY 19TH: Pediatric Crohn's: Finding the Right Path to Care. For info click here.
MAY 19TH: CCFA TAKE STEPS LA Presents: Ben Morrison: Pain in the Butt. For info and tickets go here.
MAY 21ST: First Annual Digestive Health and Wellness Expo.
Time: 1:00 pm to 4:00 pm
Where: MOTION OC
17332 Von Karman Ave, Suite 120
Irvine, CA, 92614
Talk to health professionals, hear about acupuncture and yoga and check out the latest body wellness techniques!
For more information contact Joslynn at jbroun@ccfa.org

Friday, April 29, 2011

CCFA Comedy event at the Hollywood Improv

Hey guys!

This is an official CCFA LA event but I think that anytime that we can support the CCFA and can attend any of their events we should, especially one that provides hours of laughter and entertainment to give us better perspective about our own personal struggles with IBDs.

Ben Morrison performing at the Hollywood Improv.


What: Pain in the Butt (A comedy show about Crohns)
Where: Hollywood Improv
8162 Melrose Ave Los Angeles, CA 90046
When: 5/19 8pm
Cost: $25 for the show--proceeds go to the CCFA
purchase here: laughstub.com

Details:

Pain in the Butt is comedian Ben Morrison’s critically-acclaimed show about the lighter side of Crohn’s Disease.

Chronicling Morrison’s journey from akward high-school-student to awkward high-school-student with a poop disease, Pain in the Butt is the funniest show about severe intestinal disorder, ever. Performed with live multimedia and photography Pain in the Butt is lovingly told with Morrison’s signature belend of stand-up and storytelling. With a comedian’s eye and a patient’s behind Pain in the Butt is a touching tale about a touchy tail.

Having been staged all over the world during it’s amazing 8-year run Pain in the Butt is the the countries premiere theatrical experience about laughing through illness. Don’t miss this one-of-a-kind experience.

Pain in the Butt.

It’s funny, on the insides.



Friday, April 15, 2011

Odds and Ends and Videos

First off don't forget that the Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD is this Saturday, April 16th at UCLA's Covel Common's Building. See the post before this one for registration information as well as directions to get there and parking.

In other news we are almost at $2000 folks. That's right we are currently at $1890! We are almost there and will surely reach our goal!

And lastly here is a video for you kids, it's one part humor and another part how to put on a colostomy bag so if you are squeamish at the sight of a stoma then you may want to skip watching the first video and just watch the second one simply deals with colonoscopy prep. Some mild NSFW language.



Wednesday, April 13, 2011

Final Reminder

Don't forget to register for the The Los Angeles Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD which will be held Saturday, April 16, 2011
8:15 AM - 2:00 PM
Covel Commons Building (map & parking)
Sunset Village, UCLA

The Patient and Family Education Conference is designed to educate the IBD patient community about new developments in treatment, surgical techniques, use of complementary and alternative therapies, research, nutrition, and psychosocial issues. This year's Conference sessions are:

Workshop 1

1A -- Preventive Care: Vaccinations and Cancer Screenings Gil Melmed, MD
1B -- IBD 101: The Nuts and Bolts of IBD Jennifer Choi, MD
1C -- Enterostomal Therapy Jonathan Sack, MD; Dane Deluca, RN
1D -- Navigating the Treatment Maze Jeremy Herman, MD 

Workshop 2

2A -- Real People, Real Stories - Living with IBD Alex Akers, Sherry Porat, Adi Bodenstein, Michelle Schwartz
2B -- Alternative Therapies for IBD Nimisha Parekh, MD
2C -- Food and Inflammation: Fertilizing the Weeds Doron Kahana, MD
2D -- Mind, Brain, Body Approaches to IBD Emeran Mayer, MD 

Workshop 3

3A -- Food and Inflammation: Fertilizing the Weeds Doron Kahana, MD
3B -- New Frontiers in IBD Research David Shih, MD
3C -- Controlling Your Child’s IBD through Knowledge David Ziring, MD
3D -- Alternative Therapies for IBD Nimisha Parekh, MD


For more information contact Lindsay Brown at LBrown@ccfa.org, or call (310) 478-4500.

Sunday, April 10, 2011

The Kick Off Events

Both the Los Angeles County and Orange County Kick Off events were fun and wonderful events that provided fun, entertainment and food for all that came. I won't say which event was better as both were fabulous and I was able to talk to many CCFA staff members, volunteers and also fellow IBD sufferers who were more than happy to talk about their experiences battling their respective illness. I had a good time at both events whether people watching at the Santa Monica Pier and enjoying the crisp, cool ocean breeze, or doing the same at Disneyland while dodging strollers. I recommend that everyone should go to one of these events or any other event for that matter if only to see that not only are you not alone in your struggles but that there are people out there that genuinely care about your health and state of being.

That said it was great to see Nelson, Jacklyn and Paula at the OC event and I was sorry to hear that Darrin couldn't attend. Regardless of that we were able to survive without our fearless leader. As for our current fundraising efforts, we are at $1760 with 77 days to go which means that so far we have achieved 35% of our goal. Congratulations you guys and I am more than confident that we can not only achieve our goal but surpass it as well.

Wednesday, April 6, 2011

Upcoming Comedy Event for Take Steps LA

Our CCFA Cousins in L.A. are throwing a comedy event together that is guaranteed to be a night full of laughter, fun and enjoyment. If you are free that night please consider buying tickets in order to not only support them but so that they too can return the favor when we start promoting our own events. You can buy tickets for a slightly discounted price, all relevant contact and event information are below.

From the CCFA:
Thursday, May 19, 2011, 8 PM
HOLLYWOOD IMPROV
8162 Melrose Avenue
Los Angeles, CA 90046


Take Steps Los Angeles will be hosting a hilarious night out, featuring Ben Morrison, a comedian unlike any performer you've ever seen. $25 per person and a $5 discount if you buy at the Take Steps Kick-off event. Email ashaif@ccfa.org for tickets. Proceeds benefit the Take Steps Walk Campaign for a Cure.

Just Some Quick Updates

First of all the updated totals for the Poo Crew is currently at $1710.00. Congratulations as we get closer and closer to this year's goal. I also want to acknowledge Nelson and his lovely wife who have helped raise $667.00 for the Crew not counting the ink cartridges and cell phones that they also donated. Please send them an e-mail or congratulate them at the next support group meeting. So once again, Thank you Nelson and Teresa!

As for other things. This weekend will be a rather busy one as the L.A. County and Orange County Take Step Kick Off events take place. I will be attending both as I will be manning the 20s-30s Social Group's table at the Santa Monica Pier come Saturday so please feel free to stop on by and say hello. And then I will be attending the Sunday Kick Off event at Downtown Disney where I will later infiltrate the Magic Kingdom with a select number of others to see if it truly is a small world after all. Please attend if you can, bring your friends and family and show them what the CCFA and Take Steps is all about!

From the CCFA:

Los Angeles Kickoff Event

April 9, 2011, 6 PM - 8 PM, Santa Monica Pier, at the Carousel

THIS SATURDAY April 9, 2011, 6 PM - 8 PM, Santa Monica Pier, at the Carousel!
Come out to the Santa Monica Pier and join us for the Los Angeles Take Steps Kickoff! Bring your family, friends, coworkers and teammates and enjoy ice cream sundaes, carousel rides and mingling with your fellow walkers!! Please RSVP to ashaif@ccfa.org or (310) 478-4513

Orange County Kickoff Event

Sunday, April 10th from 11 AM - 1 PM, the ESPN Zone in Downtown Disney

Come join us on April 10th at the ESPN Zone in Downtown Disney to celebrate a new season of Take Steps. Bring your friends and family to come and learn how we can hit Take Steps 2011 Orange County out of the park! For more information or to RSVP contact Joslynn at jbroun@ccfa.org or (646) 717-6208.

Saturday, April 2, 2011

To Poo or Not to Poo...

All of us eventually run into experience the wonderful feeling of having to go to the bathroom while being away from the safety of our own porcelain throne. It's at times like this that we must make the quick decision of where to go to heed the call of nature. This can vary depending on if you are out shopping versus if you are at a concert or even in the great outdoors. Regardless of location the situation is the same. You need to poo and you need to poo soon. And so for your mild entertainment I provide you with the where to poo and where not to poo list for the many different situations that you might find yourself in.

1. The supermarket/grocery store/most farmer's markets:
Most if not all of these establishments have an accessible bathroom that is often clean and well maintained due to the large volume of people that they tend to experience on a day to day basis. This may not apply to smaller stores but the management in those is often more than willing to accommodate you lest they want to start an E.coli colony in their produce section.

2. At church/church function/ funeral/ wedding/baptism, etc.:
God will understand if you have to miss part of any of these events due to the urgency to poo. And if not then he's a bastard because he's the one that stuck you with the urgency in the first place. Make sure to tell that to anyone that questions your need to leave halfway through the pastor's sermon.

3. A restaurant:
With the exception of taco stands, lunch trucks and Subway most of not all restaurants will have a restroom. In case you have to go and they inform you that only paying customers can use the restroom then drop a dollar bill on the counter, tell them that it's for a cup or bottle of water and grab the key. I actually did this once while looking at stars in Hollywood. The lady was nice and looking at the number of weirdos, tourists and homeless super heroes in the area I don't blame her.

4. Camping:
Does a bear...? You know the answer and the extended answer is that they sell awesomely portable toilets online and in camping/sporting goods stores ranging in price from $18 clear up to a couple hundred depending on its look, portability and waste storage and disposal features. I recommend buying one if you have the chance, you never know when you will need one.

5. School:

There are laws on your side regarding this for public K-12. You can talk to your professor as well as the disabled students services on most if not all Jr/Community colleges as well as full time universities if there is an issue with you leaving to go use the bathroom.

6. At a concert:

If an outdoor concert then use the portables, however as most concerts have more people than portables I recommend training your body to go at the point when there is less traffic at the portable, namely just as the concert is starting. Eat light so that you minimize how many times you go, or get a doctor's note and take your own toilet and stall.
If an outdoor concert then the same applies, since smoking is not allowed indoors in California most people will enter and leave in order to take care of this need and as long as you have your ticket an wristband you should be fine to do the same. If this is not possible talk to the security guy and let him know what is going on and see if he cuts you a break.

7.At a sporting event:
Plenty of bathrooms, and hell most people are so smashed by the end of the game that they probably won't notice if you have an accident.

8. While driving:
Pull over, drop trou, go. But using a camping toilet is probably a bit more hygienic and comfortable.

9. On a flight:
Get an aisle seat and talk to the flight attendants to let them know that you may have the need to use the bathroom more often than not. They may allow you to use the first class bathroom, the staff bathroom and possibly even go when no one is allowed to leave their seat.

10: At a hospital:
I know that this shouldn't be a problem but I am putting this here because of a personal experience. My grandmother spent her last days at St. Vincent's in Los Angeles and one day that I went to visit her I had the sudden urge to evacuate. The men's bathroom was nearby but was unfortunately closed due to repairs, the nearest bathroom was on the second floor. Sensing a rapidly approaching emergency I ran into the woman's bathroom, went inside the corner stall and did what I had to do. However just as I finished two women walked into the bathroom forcing me to stay there for a slightly longer period of time than I would have liked. Thankfully after they left no one else entered and I was able to egress with as minimal embarrassment as possible.

Which brings me to my next point. Ladies don't be afraid to use a men's bathroom, most men will give you a quick look, shrug, give a grunt and finish their business, men I don't recommend you go use a woman's bathroom unless you have a spotter and permission. Sorry those are the rules I don't write them.

Lastly here is my checklist for things to carry in your car if possible.

Overnight bag with a change of clothing and extra medications.
A toothbrush, not for brushing your teeth but for brushing "stuff" that may be stuck on a public toilet.
An extra roll of toilet paper as well as travel toilet paper.
Hand sanitizer and/or alcohol wipes.
Latex or latex free disposable gloves.
A travel or camping toilet.
Paper towels, cloth towels or mechanic rags.
A gallon of water, not for drinking purposes.
A can of deodorant or air freshener.

Friday, April 1, 2011

So I saw a taco truck...

Okay not really but while I was driving to go pay my vehicle registration this morning I heard on the radio about the Food Truck Festival that was going to be held at Santa Anita Park on April 2nd. And by food trucks I'm not just talking about those devilishly delicious but oh so bad for you taco and burrito roach coaches that you find in the alleys and backstreets and industrial areas throughout Los Angeles but also of the newer flavours that have appeared over the last few years. Sushi trucks and nacho trucks, cheesesteak trucks and burger trucks, barbecue trucks and rib trucks, pretty much anything and everything you can imagine will be represented there and boy will it be a truck foodies wetdream come true. And that got me thinking.

No, not about being hungry or food trucks or even betting on the horses but on food, or to be more specific a food festival. Since we have been blessed with a gastrointestinal system that has been declared war upon by our immune system we have the unfortunate need to be far more cautious and aware of what we consume. Nutritionists and dietitians hate us since their carefully crafted and created diet plans are foiled by our inability to eat granola or lettuce or beans or whatever healthy thing they want you to nibble on instead of those chicken nuggets.

And so I began to get an idea. Yeah I know, my ideas tend to lead to more trouble than they are worth but please bear with me. I know that we have been trying to create some sort of large event, an event that will distinguish the OC enough from L.A. so that it could have it's own CCFA chapter. Darrin and Wendy and Allison and Joslynn have been hard at work trying to find a band or a comedian or some sort of act to raise money and show that the OC is capable of handling it's own chapter. And so back to the food festival idea.

What if we held a food festival, but not just any kind of food festival. Forget about the fried Oreos and chili cookoffs and barbecue do or dies, I'm talking about organic, gluten free, community garden/farm, Vegan, Vegetarian and health specialized foods. Still with me? We are fortunate to have plenty of Trader Joes, Fresh & Easy, Sprouts and several other healthier type of grocery stores in the OC, there is also Whole Foods and Wild Oats and countless of mom and pop grocers. Then there are the celebrity cooks and chefs that specialize in this type of cuisine.

Now the questions is, is it feasible? Yes, I know it's kind of, I want to say ironic, that a group that caters to people with GI issues would sponsor such an event but at the same time it makes sense in that you can bring dietary awareness to those who suffer from and IBD and show them that they don't have to change their habits to a water and water diet. And that's why I'm tossing the idea out for you guys to look at and (pardon the pun) digest and see if it's worth doing.

Any and all feedback on this matter would be appreciated, logistically it would require some work and lots and lots of planning, but I don't think that it's a far-fetched or impossible idea. Let me know what you think people.