All the Updates that You can Handle!

Sorry for the lack of updates but Blogger has been down for the last few days making it impossible to add any new content. But thankfully it's back up and what was not blogged about can now be written!

First of all, congrats to all we are now at $4005! Great job you guys!
Second of all here is the list of events that are soon to come.

From Amira Shaif

Have you ever wanted to help loved ones understand what you're going through with IBD, but not quite sure how to do it? Need a night out with friends? Want to help CCFA and Take Steps spread the word about an awesome fundraiser? Ben has suffered from Crohn's Disease for many years and has created the perfect performance. Although we know there is nothing "funny" about having IBD Ben shares his story with humor and gives the audience the opportunity to laugh along with him as he discusses what is sometimes considered the "un-discussable"....
PAIN IN THE BUTT - Benefiting CCFA LA Take Steps
Don't just join us, but tell your friends to come too!

http://online.ccfa.org/site/MessageViewer?em_id=82664.0&dlv_id=85385
Hollywood Improv
8162 Melrose Ave
Los Angeles, CA 90046
Thursday 05/19/2011
6PM Dinner & Silent Auction, 8PM Comedy Show
Tickets ae $25

REGISTER TODAY
For this FREE Teleconference/Webcast
This educational event will help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. Pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold will discuss:

Important differences between pediatric and adult Crohn's disease
The medical management of pediatric CD
The critical role of nutrition
Growth and development of the pediatric Crohn's patient
Quality of life and support systems


Thursday, May 19, 2011

8:00 PM to 9:15 PM Eastern Time
7:00 PM to 8:15 PM Central Time
6:00 PM to 7:15 PM Mountain Time
5:00 PM to 6:15 PM Pacific Time

First Annual Digestive Health and Wellness Expo - Orange County

Join us on May 21st from 1:00pm to 4:00pm

to learn new ways to facilitate total mind and body wellness.
Expo with be held at In Motion OC
17332 Von Karman Ave Suite 120
Irvine, CA 92614

Come and speak with doctors one on one, acupuncturists, Pilates instructors, yoga instructors, and many more.

We are excited to announce that The Bite Market, a gluten free market, will be at the expo with baked goods samples. Along with Bari Rooney, an IBD nutritionist.
For more information or if you would like a booth
contact Joslynn at jbroun@ccfa.org or 646-717-6208

AND DARRIN HAS OFFERED TO DRIVE!!!

Mid-Week Update and More Jazz

Greetings all! This is your midweek update, first of all let me congratulate you all as we have surpassed 50% of our Take Steps goal and are currently at $3340 $3365! Great job you guys, we are almost there!

On a similar note do not forget that this weekend, May 7th will be the day that we are holding our yard sale fundraiser at Allison's place. If you have anything to donate to the cause or simply wish to hang out please contact Allison so that she can give you all the pertinent info or contact me and I'll do the same. Darrin is also more than happy to pick up any large objects that you can't transport so please contact him if you need someone with muscles and a big truck. Contact me if you need someone with a dolly and an excuse on why I can't lift heavy boxes.

On to other things!

Upcoming Events:
MAY 19TH: Pediatric Crohn's: Finding the Right Path to Care. For info click here.
MAY 19TH: CCFA TAKE STEPS LA Presents: Ben Morrison: Pain in the Butt. For info and tickets go here.
MAY 21ST: First Annual Digestive Health and Wellness Expo.
Time: 1:00 pm to 4:00 pm
Where: MOTION OC
17332 Von Karman Ave, Suite 120
Irvine, CA, 92614
Talk to health professionals, hear about acupuncture and yoga and check out the latest body wellness techniques!
For more information contact Joslynn at jbroun@ccfa.org

Live Pediatric Webcast on Crohn's. Register Today!

From the CCFA:

REGISTER TODAY
For this FREE Teleconference/Webcast

Thursday, May 19, 2010

8:00 PM to 9:15 PM Eastern Time
7:00 PM to 8:15 PM Central Time
6:00 PM to 7:15 PM Mountain Time
5:00 PM to 6:15 PM Pacific Time

This educational event will help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. Pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold will discuss:

* Important differences between pediatric and adult Crohn's disease
* The medical management of pediatric CD
* The critical role of nutrition
* Growth and development of the pediatric Crohn's patient
* Quality of life and support systems


Sandra C. Kim, MD is also an assistant professor in the Department of Pediatrics -
Division of Gastroenterology at the University of North Carolina in Chapel Hill, NC.

Janis Arnold, MA, LICSW is a clinical social worker at the Division of Gastroenterology and Nutrition at Children's Hospital Boston in Boston, MA.

The speakers will also answer audience questions during an interactive Q & A session! Register online today, or register by calling toll-free: (877) 264-4949, ext. 3!

Odds and Ends and Videos

First off don't forget that the Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD is this Saturday, April 16th at UCLA's Covel Common's Building. See the post before this one for registration information as well as directions to get there and parking.

In other news we are almost at $2000 folks. That's right we are currently at $1890! We are almost there and will surely reach our goal!

And lastly here is a video for you kids, it's one part humor and another part how to put on a colostomy bag so if you are squeamish at the sight of a stoma then you may want to skip watching the first video and just watch the second one simply deals with colonoscopy prep. Some mild NSFW language.

Final Reminder

Don't forget to register for the The Los Angeles Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD which will be held Saturday, April 16, 2011
8:15 AM - 2:00 PM

Covel Commons Building (map & parking)
Sunset Village, UCLA

The Patient and Family Education Conference is designed to educate the IBD patient community about new developments in treatment, surgical techniques, use of complementary and alternative therapies, research, nutrition, and psychosocial issues. This year's Conference sessions are:

Workshop 1

1A -- Preventive Care: Vaccinations and Cancer Screenings Gil Melmed, MD
1B -- IBD 101: The Nuts and Bolts of IBD Jennifer Choi, MD
1C -- Enterostomal Therapy Jonathan Sack, MD; Dane Deluca, RN
1D -- Navigating the Treatment Maze Jeremy Herman, MD 

Workshop 2

2A -- Real People, Real Stories - Living with IBD Alex Akers, Sherry Porat, Adi Bodenstein, Michelle Schwartz
2B -- Alternative Therapies for IBD Nimisha Parekh, MD
2C -- Food and Inflammation: Fertilizing the Weeds Doron Kahana, MD
2D -- Mind, Brain, Body Approaches to IBD Emeran Mayer, MD 

Workshop 3

3A -- Food and Inflammation: Fertilizing the Weeds Doron Kahana, MD
3B -- New Frontiers in IBD Research David Shih, MD
3C -- Controlling Your Child’s IBD through Knowledge David Ziring, MD
3D -- Alternative Therapies for IBD Nimisha Parekh, MD


For more information contact Lindsay Brown at LBrown@ccfa.org, or call (310) 478-4500.

Upcoming CCFA events

There are two CCFA events coming up soon, these are educational and informative events for those suffering from an IBD and their families and loved ones. The presenters are great, very knowledgeable and know what it feels like to suffer the suffering that we suffer. If you can please try to attend one of the following two events, they may have cookies and donuts!

Understanding Inflammatory Bowel Diseases: What Every Patient Needs to Know.
Saturday, March 26, 2011
1:00 - 3:00 PM
Courtyard Marriott, Riverside, CA

and

The Los Angeles Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD

Saturday, April 16, 2011
8:15 AM - 2:00 PM
Covel Commons Building
Sunset Village, UCLA
Los Angeles, CA.
List of Speakers is five posts down.

For more information on either event please feel free to contact Lindsay Brown at LBrown@ccfa.org, or call (310) 478-4500

Spring 2011 IBD Patient and Family Conference

Alright gang the Spring IBD conference is coming up in April. It will take place on Saturday April 16th from 8:15am to 2:15pm. You don't have to stay for the whole thing but it's always nice to see what varies authorities and peers have to say in regards to their own experiences or efforts in dealing with the various IBDs. Registration is $10.00 but they will not turn anyone away due to financial hardship.

The details:
Saturday, April 16, 2011
8:15am-2:15pm
UCLA Covel Commons
330 DeNeve Drive
Los Angeles, CA 90095


There are three ways to register:
Register online at http://la.ccfa.org.
By phone: (310) 478-4500
or my mail: CCFA Greater LA/OC Chapter
ATTN: Conference
1640 S.Sepulveda Blvd., Ste. 214
Los Angeles, CA 90025

I have included a scanned copy of the agenda please contact Darrin, myself or the CCFA or any of its representatives for more information if you are interested in attending. Thanks!

Click picture to enlarge.

They may have donuts!!!