Showing posts with label medication. Show all posts
Showing posts with label medication. Show all posts

Wednesday, April 27, 2011

More Random Randomness

First of all our midweek update has us at $2350 $2650 $2750! Great job you guys, not bad as we still have a bit over two months left before the walk with plenty of time to raise even more money.

Second of all there is a new website from the CCFA named I'll Be Determined, designed to help guide you through your path as you learn to cope, control and live with your respective IBD. So feel free to give it a look and see if it has answers or suggestions to questions or issues that you may have.

As for other news I have a prescription at Walgreens that I should really pick up, no idea what it's for, it might be Protonix or 6-MP or maybe some sort of supplement. I'll try to check on that tonight if I remember. Oh and a cousin of mine gave me his turtle. Cute little squirt that will probably live a few decades and requires a bit more care and maintenance than a dog. In hindsight I should have probably said no to taking it in but I'm a sucker for strange and exotic like pets, which means I will be getting a larger tank, a heat lamp and other such items to create a pleasant environment for the little squirt. Just thought you should all know.

With all that done and said please feel free to enjoy the comedic talents of this turtle humping a boot. Enjoy!

Tuesday, April 19, 2011

Just in Time for the Playoffs!

That's right as most of us have probably not noticed the Stanley Cup Playoffs for that barely heard of and even less understood sport from our cousins upstairs, Hockey, are in full swing. Chicago Blackhawks right winger is one such player that will be participating in them. He is also one of many that suffer the effects of ulcerative colitis. I found his PSA spot for LIVINGwithUC.com a helpful site from which I may borrow material from. Feel free to visit the site and remember that you are not alone in your battle with IBD. Be sure to take in a hockey game this post-season and Enjoy!

Live Pediatric Webcast on Crohn's. Register Today!

From the CCFA:

REGISTER TODAY
For this FREE Teleconference/Webcast

Thursday, May 19, 2010

8:00 PM to 9:15 PM Eastern Time
7:00 PM to 8:15 PM Central Time
6:00 PM to 7:15 PM Mountain Time
5:00 PM to 6:15 PM Pacific Time

This educational event will help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. Pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold will discuss:

* Important differences between pediatric and adult Crohn's disease
* The medical management of pediatric CD
* The critical role of nutrition
* Growth and development of the pediatric Crohn's patient
* Quality of life and support systems


Sandra C. Kim, MD is also an assistant professor in the Department of Pediatrics -
Division of Gastroenterology at the University of North Carolina in Chapel Hill, NC.

Janis Arnold, MA, LICSW
is a clinical social worker at the Division of Gastroenterology and Nutrition at Children's Hospital Boston in Boston, MA.

The speakers will also answer audience questions during an interactive Q & A session! Register online today, or register by calling toll-free: (877) 264-4949, ext. 3!

Sunday, March 20, 2011

Upcoming CCFA events

There are two CCFA events coming up soon, these are educational and informative events for those suffering from an IBD and their families and loved ones. The presenters are great, very knowledgeable and know what it feels like to suffer the suffering that we suffer. If you can please try to attend one of the following two events, they may have cookies and donuts!

Understanding Inflammatory Bowel Diseases: What Every Patient Needs to Know.
Saturday, March 26, 2011
1:00 - 3:00 PM
Courtyard Marriott, Riverside, CA


and

The Los Angeles Spring 2011 IBD Patient and Family Education Conference: How to Manage IBD

Saturday, April 16, 2011
8:15 AM - 2:00 PM
Covel Commons Building
Sunset Village, UCLA
Los Angeles, CA.

List of Speakers is five posts down.

For more information on either event please feel free to contact Lindsay Brown at LBrown@ccfa.org, or call (310) 478-4500

Friday, March 11, 2011

Spring 2011 IBD Patient and Family Conference

Alright gang the Spring IBD conference is coming up in April. It will take place on Saturday April 16th from 8:15am to 2:15pm. You don't have to stay for the whole thing but it's always nice to see what varies authorities and peers have to say in regards to their own experiences or efforts in dealing with the various IBDs. Registration is $10.00 but they will not turn anyone away due to financial hardship.

The details:
Saturday, April 16, 2011
8:15am-2:15pm
UCLA Covel Commons
330 DeNeve Drive
Los Angeles, CA 90095


There are three ways to register:
Register online at http://la.ccfa.org.
By phone: (310) 478-4500
or my mail: CCFA Greater LA/OC Chapter
ATTN: Conference
1640 S.Sepulveda Blvd., Ste. 214
Los Angeles, CA 90025

I have included a scanned copy of the agenda please contact Darrin, myself or the CCFA or any of its representatives for more information if you are interested in attending. Thanks!

Click picture to enlarge.

They may have donuts!!!

Sunday, March 6, 2011

Real-Life Advice for Handling a Sudden Crohn's Attack

*Excerpts from "Real-Life Advice for Handling a Sudden Crohn's Attack" by Connie Brichford

While Crohn’s disease has a wide range of symptoms and affects each person differently, most people with Crohn's do share the need to use the bathroom frequently throughout the day. And that presents unique issues — bathroom accessibility and the ability to clean up after an attack being two big ones.

Crohn’s Disease: Start by Preventing Attacks

Pack extra medications in your tote or knapsack and keep a supply at your desk at work.
Medications are sometimes overlooked in the rush to find your keys and make a commuter bus or train. But properly following all facets of your treatment plan, including taking needed medications, is what keeps you feeling good.[Ed:I always have backup pills in my car because I know that I forget to take them from time to time.]

Crohn’s Disease: Managing in Public

-Always know where bathrooms are located.[Ed:This needs to be repeated over and over]
-Carry a change of underwear. [Ed: I have a nice little overnight pack in my car with extra underwear, a shirt and shorts and socks]
-Always have your own tissues or toilet paper. [Ed: The first aid kit in my car has a roll of TP. They also sell travel TP that will fit in backpacks, purses and even your pocket. Usually about a dollar in the travel section in pharmacies and retail stores]

Crohn’s Disease: Sharing Your Situation

Finding the balance between confidentiality and disclosure can be hard. The nature of Crohn’s attacks makes them an awkward topic of conversation, but you want people to know enough about your condition so that they understand why you might have to run to the restroom. [It] helps to tell close friends mostly so they don’t worry, or think it’s weird when [you] have to go to the bathroom all the time.

Deciding who to tell will also depend on your personal school or work situation. [P]eople who must ask to use the restroom, like schoolchildren, or whose jobs require someone else to cover for them when they take a break, might benefit from telling the appropriate people — a manager, co-workers, or teachers.

Public attacks can be among the most upsetting situations for those with Crohn’s disease, but being prepared will allow you to handle them without becoming overwhelmed and without the fear of drawing unwanted attention to yourself.

-see full text at http://www.everydayhealth.com/crohns-disease/crohns-disease-attack-advice.aspx?xid=nl_EverydayHealthLivingWithCrohnsDisease_20110301

Sunday, February 20, 2011

So you think you have a flare up

You wake up one morning and your gut is hurting, you rush to the bathroom and know that this is the beginning of an all day tribute to the porcelain god. You wonder what you can do, that is other than stock up on magazines, Gatorade and set up an Internet line to your toilet. Here are a few suggestions, keep in mind that every individual is different so something that works for someone may not work for someone else.

1. Dietary:
A light diet may be helpful, broth, jello, decaffeinated teas and Gatorade. Remember you will be losing liquids, minerals and electrolytes that need to be replenished. Even if you think that it's a good idea to avoid food because it may cut down on bowel movements it's not. If anything it can lead to dehydration, mineral deficiency and possible anemia. That doesn't mean that you should order a bucket of KFC friend skins and down it all with a gallon of cola but instead make conscious food choices that will help you see what you can and can't tolerate in order to avoid those foods in the future.

2. Exercise:
I know you want to curl up in bed, on the couch, in the tub, or on the toilet and die but don't. Try to get minimal exercise in order to promote digestion and healing. I'm not talking about running a triathlon, conquering Everest or cycling the Tour de France, but walk around the block, walk to dog, or take care of any low impact chores that may get your mind off the pain in the ass that is a flare up. Trust me it's good for you.

3. Clothing:
Dark clothing, dark underwear, NO WHITES. Because there is nothing more embarrassing than people informing you that you accidentally sat on a 99 cent burrito from Taco Bell. It's bad. I am aware that many of us would rather not leave the home when a flare up occurs but in case you have to, for say an emergency such as saving the world because your PIN number happens to be the code that the alien invaders need to avoid wiping us out, well then dress comfortable, but not in such a fashion that someone may mistake you for an animated pile of laundry.

4. Dating:
Cancel the date. No seriously, cancel. Tell them that your car blew up, that you were abducted by space pirates, that you were drafted to fight the war on bad literature turned into horrible movies, anything to get you out but that will still allow you to have a second chance date. Unless they are aware of your condition and are willing to come over and nurse you to health, in that case then play the sympathy cards. Results may vary.

5. Meds:
Yes we all hate taking them, we all hate the side-effects but even during the worse of flare-ups do not fall into the temptation to self medicate and double your doses hoping it will clear things up. It probably won't work and may instead cause your symptoms too worsen. Take your medications as directed unless told otherwise by your GI. That's your GI and not the guy across the street named Doc X who got his GED in Medicine from Online Diploma Mill U. It doesn't work that way. So take as directed and if things get really, really bad then it's off to the ER for you.

6. "Herbal remedies":
Yes as someone with an IBD you qualify for a card. Yes you live in state where you can get said card and remedies. I am neither for nor against them as they may or may not work in relieving pain and other ailments related to IBDs. But if you choose this path remember to have plenty of light snacking materials around as well as plenty of electrolyte replenishing liquids as the ensuing munchies may give you the desire to eat anything in sight. The liquid replenishment is for the liquid to be lost when your body realized that you just ate everything in sight.

7. Transportation:
If you haven't already try to get a handicapped placard or plate. This will help in case that you have to leave home to buy something. If possible get a driver but that can't always be helped. I know that some will find it strange to get a disabled person placard but it comes in handy in cases where your body needs to go and there is nowhere to park. Trust me on this. It's also helpful at sporting events, crowded malls on Black Friday and at Disneyland. Use it responsibly.

8. Alcohol:
Avoid during a flare. I don't care what the French say, avoid it. It's bad. Trust me on this.

9. Toilet paper:
This is a tricky issue since even the softest most gentle of toilet papers will turn into sandpaper if used at the frequency that it's used during a flare up. Therefore I suggest a combination of baby wipes, soft toilet paper and if possible getting a bidet seat or sprayer for your toilet. Your butt will thank you and that will be more than enough to offset the cost.

10. Friends:
Have them come over and throw a bathroom party. Play games, watch movies and come up with healthy food choices for you. I know that this sounds silly and may work better for women than men but hell guys can throw a sports themed one.

I am aware that when you are flaring you just want to die but all the same we have to try to break away from the anti-social aspects of our disease and conquer it instead of letting it conquer us. We have to own our disease, no matter how hard it is, no matter how daunting it may seem you can do it and live as normal of a life as you want it to be.