Monday, May 30, 2011

Happy Memorial Day

It's Memorial Day today and yes we still have a support group meeting this lovely day from 6 to 8 in the pm at the same place in the same room. Our updated total so far is
$5375 with a bit under a month to go. I think we can make even more than that by then so let's go at it!

Sunday, May 22, 2011


Sorry for the lack of updates it has been a rather busy last few weeks for me. However I did get to go to the Improv on Thursday to see Ben Morrison perform and I loved it. The MC was great, the first act was wonderful, the second act was... well... breathing, but the main act was phenomenal. If you want to catch a glimpse of what I saw and experienced please feel free to see the video below. However it catches only a portion of the genius of the real deal.

And in case you are all wondering we have currently raised $4300! Congrats, but we still have a bit of a way to go but we can do it!

Friday, May 13, 2011

All the Updates that You can Handle!

Sorry for the lack of updates but Blogger has been down for the last few days making it impossible to add any new content. But thankfully it's back up and what was not blogged about can now be written!

First of all, congrats to all we are now at $4005! Great job you guys!
Second of all here is the list of events that are soon to come.

From Amira Shaif

Have you ever wanted to help loved ones understand what you're going through with IBD, but not quite sure how to do it? Need a night out with friends? Want to help CCFA and Take Steps spread the word about an awesome fundraiser? Ben has suffered from Crohn's Disease for many years and has created the perfect performance. Although we know there is nothing "funny" about having IBD Ben shares his story with humor and gives the audience the opportunity to laugh along with him as he discusses what is sometimes considered the "un-discussable"....
PAIN IN THE BUTT - Benefiting CCFA LA Take Steps
Don't just join us, but tell your friends to come too!
Hollywood Improv
8162 Melrose Ave
Los Angeles, CA 90046
Thursday 05/19/2011
6PM Dinner & Silent Auction, 8PM Comedy Show
Tickets ae $25

For this FREE Teleconference/Webcast
This educational event will help patients, caregivers, and pediatricians understand the unique medical and psychosocial needs of children with CD and the importance of continual care. Pediatric gastroenterologist Dr. Sandra Kim and clinical social worker Janis Arnold will discuss:

Important differences between pediatric and adult Crohn's disease
The medical management of pediatric CD
The critical role of nutrition
Growth and development of the pediatric Crohn's patient
Quality of life and support systems

Thursday, May 19, 2011

8:00 PM to 9:15 PM Eastern Time
7:00 PM to 8:15 PM Central Time
6:00 PM to 7:15 PM Mountain Time
5:00 PM to 6:15 PM Pacific Time

First Annual Digestive Health and Wellness Expo - Orange County

Join us on May 21st from 1:00pm to 4:00pm

to learn new ways to facilitate total mind and body wellness.
Expo with be held at In Motion OC
17332 Von Karman Ave Suite 120
Irvine, CA 92614

Come and speak with doctors one on one, acupuncturists, Pilates instructors, yoga instructors, and many more.

We are excited to announce that The Bite Market, a gluten free market, will be at the expo with baked goods samples. Along with Bari Rooney, an IBD nutritionist.
For more information or if you would like a booth
contact Joslynn at or 646-717-6208


Saturday, May 7, 2011

Yard Sale Update

As you may have all heard from Allison the total we raised from the yard sale came to $505! Which raises our total to $3870! We are almost to our goal and we still have more than enough time to reach it and even surpass it. Please thank Allison and Chuck for hosting the yard sale as well as all of you who could help out as well as all of you great people that donated stuff for the yard sale, we could have never done it without you!

Wednesday, May 4, 2011

Mid-Week Update and More Jazz

Greetings all! This is your midweek update, first of all let me congratulate you all as we have surpassed 50% of our Take Steps goal and are currently at $3340 $3365! Great job you guys, we are almost there!

On a similar note do not forget that this weekend, May 7th will be the day that we are holding our yard sale fundraiser at Allison's place. If you have anything to donate to the cause or simply wish to hang out please contact Allison so that she can give you all the pertinent info or contact me and I'll do the same. Darrin is also more than happy to pick up any large objects that you can't transport so please contact him if you need someone with muscles and a big truck. Contact me if you need someone with a dolly and an excuse on why I can't lift heavy boxes.

On to other things!

Upcoming Events:
MAY 19TH: Pediatric Crohn's: Finding the Right Path to Care. For info click here.
MAY 19TH: CCFA TAKE STEPS LA Presents: Ben Morrison: Pain in the Butt. For info and tickets go here.
MAY 21ST: First Annual Digestive Health and Wellness Expo.
Time: 1:00 pm to 4:00 pm
17332 Von Karman Ave, Suite 120
Irvine, CA, 92614
Talk to health professionals, hear about acupuncture and yoga and check out the latest body wellness techniques!
For more information contact Joslynn at

Sunday, May 1, 2011

Today is the dawn of a new month aka May.

It's May, it's also a nice albeit warm day out and we have raised $2835 $2985 with about two months left to go, great job guys!

As for other things red meat appeared the be the main culprit in what had been causing my bleeding as it has been greatly reduced by 85-90% On a similar note my latest CBC tests have revealed that I am no longer anemic and both my liver and kidney function tests are normal. I have also begun weaning myself from prednisone, I am down to 15 mg with no flare ups or apparent bleeding or inflammation which I believe is a great thing. But enough about me. Let's talk about you. Or you. Or you hiding in that corner over there. And since today is May Day let's celebrate by watching these videos on bathroom signs from around the world. Viewer discretion is advised.